A Rare Disease Day Update: RDCRN Survey on Impacts of COVID-19 sheila.wolfer@… Fri, 07/23/2021 - 13:48
A Rare Disease Day Update: RDCRN Survey on Impacts of COVID-19

Researchers from the Rare Diseases Clinical Research Network deliver an update on the survey of the impacts of COVID-19 of people living with rare diseases during Rare Disease Day at NIH, March 2021. Video features Marc E. Rothenberg, MD, PhD, Principal Investigator of the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) and Thomas W. Ferkol, MD, Co-Principal Investigator of the Genetic Disorders of Mucociliary Clearance Consortium (GDMCC).

Preliminary Survey Results Highlight Impact of COVID-19 on Rare Disease Community Dakota Campbell Wed, 02/10/2021 - 15:57
Maurizio Macaluso, MD, DrPH, FACE

Maurizio Macaluso, MD, DrPH, FACE, co-principal investigator with the Rare Diseases Clinical Research Network’s Data Management and Coordinating Center, shares how a preliminary analysis of more than 3,400 responses to a recent survey of people living with rare diseases and their caregivers is shedding new light on their experiences during the novel coronavirus (COVID-19) pandemic.

RDCRN Partnering with NIAID on Serosurvey of People Living with Rare Diseases Dakota Campbell Mon, 02/08/2021 - 14:54
Photo courtesy of the CDC | Alissa Eckert, MS; Dan Higgins, MAMS

The Rare Diseases Clinical Research Network (RDCRN) will be collaborating with the NIH’s National Institute of Allergy and Infectious Diseases (NIAID) and the University of Pittsburgh on a SARS-CoV-2 Pandemic Serosurvey among people who live with rare diseases.