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Collaborate With Us

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The Rare Diseases Clinical Research Network (RDCRN) is a National Institutes of Health-funded research network of 20 active consortia or research groups—teams of researchers, patients, and clinicians—each focused on a group of rare disorders. The network fosters collaborative research among scientists to better understand how particular rare diseases progress and to develop improved approaches for diagnosis and treatment.

Implementation of Data Standards are imperative in achieving the goals of data sharing, a key component of the Rare Disease Clinical Research Network (RDCRN). Please review the data templates and guidance document provided as part of your data collection and database development process.

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Funding and fellowship opportunities for early-stage investigators and other researchers can be found on our Funding Opportunities page.

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To learn more about each of our consortia and explore potential collaboration opportunities, please visit each of the consortia sites linked below.

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