Patient Advocate Spotlight: Connie Lee Creates Connections for Cerebral Cavernous Malformation Research Dakota Campbell Tue, 10/26/2021 - 09:43
Headshot of Connie Lee, PsyD
Connie Lee, PsyD

Connie Lee, PsyD, is president and CEO of the Angioma Alliance and a member of the Brain Vascular Malformation Consortium (BVMC). She is also a licensed clinical psychologist and the mother of a daughter with multiple cavernous angiomas. Here, she shares her start in patient advocacy, current work, and future goals.

Data Helps Researchers Link Cavernous Angioma to Disordered Gut Microbiomes Dakota Campbell Thu, 06/11/2020 - 15:03
Brain Vascular Malformation Consortium (BVMC)

In patients with cavernous angioma (CA), lesions in the brain are caused by imbalances in the gut microbiome, according to a new study in the journal Nature Communications. Data from the Brain Vascular Malformation Consortium (BVMC) helped researchers make this connection, the first of its kind in any human neurovascular disease.