Patient Advocate Spotlight: Connie Lee Creates Connections for Cerebral Cavernous Malformation Research Dakota Campbell Tue, 10/26/2021 - 09:43
Headshot of Connie Lee, PsyD
Connie Lee, PsyD

Connie Lee, PsyD, is president and CEO of the Angioma Alliance and a member of the Brain Vascular Malformation Consortium (BVMC). She is also a licensed clinical psychologist and the mother of a daughter with multiple cavernous angiomas. Here, she shares her start in patient advocacy, current work, and future goals.

Patient Spotlight: Anthony Anzell Fights Hereditary Hemorrhagic Telangiectasia with Endurance and Education Dakota Campbell Tue, 10/19/2021 - 14:05
Headshot of Anthony Anzell, PhD
Anthony Anzell, PhD

Anthony Anzell, PhD, is a postdoctoral fellow at the University of Pittsburgh studying hereditary hemorrhagic telangiectasia (HHT). He also happens to be an HHT patient. Here, Dr. Anzell shares his HHT journey, from diagnosis, to ultramarathons, to the lab.