Senior Researcher Spotlight: Linda Kusner Explores the Biology Behind Myasthenia Gravis Dakota Campbell Fri, 02/25/2022 - 16:12
Headshot of Linda Kusner, PhD

Linda Kusner, PhD, is a research professor of pharmacology, physiology, genomics, and precision medicine at the George Washington University School of Medicine and Health Sciences, as well as a member of the Myasthenia Gravis Rare Disease Network (MGNet). Her research focuses on the understanding of extraocular muscle physiology and response to disease, including myasthenia gravis (MG). Here, she shares her start in rare disease research, exciting discoveries, and future goals. 

Patient Spotlight: Felipe Polo-Wood Forges Ahead with Myasthenia Gravis Dakota Campbell Fri, 02/25/2022 - 15:58
Headshot of Felipe Polo-Wood

Felipe Polo-Wood is an innovator—both in his work as an IT consultant and as a patient with myasthenia gravis (MG), a chronic autoimmune neuromuscular disease characterized by weakness of the skeletal muscles. Here, Felipe shares his journey with MG, from fighting for a diagnosis to making a difference through research participation.

Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article sheila.wolfer@… Tue, 05/04/2021 - 12:40
Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article

Challenges in conducting clinical research in the midst of the COVID-19 pandemic are spotlighted in an article from three consortia of the Rare Diseases Clinical Research Network (RDCRN). Their contribution was featured in the latest issue of Rare Neurological Diseases Special Report.