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Rare Research Report: January 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Join the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025

January 28, 2025

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FDA-NIH Rare Disease Day. February 27-28, 2025

Rare Research Report: December 2024

December 18, 2024

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Porphyrias Over Time: What We’re Learning from a Natural History Study

December 17, 2024

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Porphyrias Over Time: What We're Learning from a Natural History Study

MGNet Announces 2025 Scholars

December 9, 2024

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Headshots of Dr. Sikorski and Dr. Wildberger

Rare Research Report: November 2024

November 26, 2024

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Leukodystrophy Over Time: What We’re Learning from a Natural History Study

November 26, 2024

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Leukodystrophy Over Time: What We’re Learning from a Natural History Study

Rare Research Report: October 2024

October 24, 2024

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Pompe Disease Over Time: What We’re Learning from a Natural History Study

September 25, 2024

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Pompe Disease Over Time: What We're Learning from a Natural History Study