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Pre-Doc Preparatory Program (P³) in Translational Research

Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and t

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Rare Research Report: January 2025

January 29, 2025

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Rare Research Report: December 2024

December 18, 2024

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Porphyrias Over Time: What We’re Learning from a Natural History Study

December 17, 2024

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Porphyrias Over Time: What We're Learning from a Natural History Study

MGNet Announces 2025 Scholars

December 9, 2024

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Headshots of Dr. Sikorski and Dr. Wildberger

Rare Research Report: November 2024

November 26, 2024

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Leukodystrophy Over Time: What We’re Learning from a Natural History Study

November 26, 2024

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Leukodystrophy Over Time: What We’re Learning from a Natural History Study

Rare Research Report: October 2024

October 24, 2024

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Pompe Disease Over Time: What We’re Learning from a Natural History Study

September 25, 2024

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Pompe Disease Over Time: What We're Learning from a Natural History Study