Spotlight on Rare Diseases
The Newsletter of the National Institutes of Health-funded Rare Diseases Clinical Research Network
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Rare Research Report: November 2025 Go to IssueNewsletter of the Rare Diseases Clinical Research Network
Spotlight on Rare Diseases is the official newsletter of the Rare Diseases Clinical Research Network, an NIH-funded research network of 21 active consortia or research groups -- teams of researchers, patients, and clinicians -- each focused on a group of rare disorders. Look to this newsletter for news, features, and insights about rare diseases research from across our national network. Questions? Contact us at rd.dmcc@cchmc.org.
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Spotlight on Rare Diseases Newsletter Editor
Dakota Campbell
RDCRN Communications Program Manager