Spotlight on Rare Diseases
The Newsletter of the National Institutes of Health-funded Rare Diseases Clinical Research Network
In this Issue:
Pompe Disease Over Time: What We’re Learning from a Natural History Study Former LDN Fellow Paves the Way for Earlier Diagnosis in Metachromatic Leukodystrophy Rare Research Report September 2024 Go to IssueNewsletter of the Rare Diseases Clinical Research Network
Spotlight on Rare Diseases is the official newsletter of the Rare Diseases Clinical Research Network, an NIH-funded research network of 20 active consortia or research groups -- teams of researchers, patients, and clinicians -- each focused on a group of rare disorders. Look to this newsletter for news, features, and insights about rare diseases research from across our national network. Questions? Contact us at rd.dmcc@cchmc.org.
Go to Issue:
Spotlight on Rare Diseases Newsletter Editor
Dakota Campbell
RDCRN Communications Program Manager