Latest News

Rare Research Report: January 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

Read More

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16, 2024

Read More

Flyer advertising the survey appearing on a laptop screen.

Rare Diseases Clinical Research Network Launches COVID-19 Impacts Survey for Participants in the NIH COVID19 Antibody Study (COVIDSRCH)

May 4, 2022

Read More

Image of the COVID-19 virus

RDCRN Launches Follow-up Survey for Rare Disease Patients and Their Families About Impacts of COVID-19

December 6, 2021

Read More

RDCRN Launches Follow-up Survey for Rare Disease Patients and Their Families About Impacts of COVID-19

A Rare Disease Day Update: RDCRN Survey on Impacts of COVID-19

July 23, 2021

Read More

screenshot of the rare disease update video

Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article

May 4, 2021

Read More

rare-disease-neuro-special-report

Preliminary Survey Results Highlight Impact of COVID-19 on Rare Disease Community

February 10, 2021

Read More

Maurizio Macaluso, MD, DrPH, FACE

RDCRN Partnering with NIAID on Serosurvey of People Living with Rare Diseases

February 8, 2021

Read More

COVID-19 virus

Lab Notes: A Rare Disease Physician-Scientist Reports on Impacts of COVID-19

May 29, 2020

Read More

Mustafa Sahin, MD, PhD