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Rare Research Report: June 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
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![Rare Research Report logo](/sites/default/files/styles/featured_image_for_news/public/2022-09/RDCRN_Blog-RareResearchReport_0.jpg?itok=BthNK150)
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![Telehealth in Myasthenia Gravis: What We’re Learning from a Pilot Study](/sites/default/files/styles/news/public/2023-08/Pilot-MGNet.jpg?itok=MWSBs9_m)
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![Phenylalanine Families and Researchers Exploring Evidence (PHEFREE) logo](/sites/default/files/styles/news/public/2022-11/RDCRN_Blog-PHEFREE.jpg?itok=VeJvkEAS)
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![Congenital and Perinatal Infections Consortium logo](/sites/default/files/styles/news/public/2022-10/RDCRN_Blog-CPIC.jpg?itok=gyN45fUM)
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![Global Leukodystrophy Initiative Clinical Trials Network logo](/sites/default/files/styles/news/public/2022-08/RDCRN_Blog-GLIA.jpg?itok=lnL_FnKR)
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![Inherited Neuropathy Consortium logo](/sites/default/files/styles/news/public/2022-08/RDCRN_Blog-INC.jpg?itok=_s3Jg2Zf)