Latest News

Rare Research Report: December 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Senior Researcher Spotlight: Douglas Marchuk Leads Disease-Gene Discoveries in Brain Vascular Malformations

October 13, 2021

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Marchuk

Scientist Spotlight: Marc Rothenberg Leads Eosinophilic Collaboration and Research to New Discoveries

January 14, 2021

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Marc Rothenberg, MD, PhD

Dr. Rothenberg received the Paul Ehrlich Lectureship Award

February 28, 2019

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Rauch received the Charles Slemenda Award

January 4, 2018

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Dr. Frank Rauch

Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 3, 2018

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Dr. Stephen C. Groft, an Appreciation

April 3, 2014

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Photos of Dr. Stephen C. Groft

Mr. Piano Man: Reflections on the Life of Physician, Scientist, and Humanitarian, William L. Young, MD (1954–2013)

April 1, 2014

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Dystonia Coalition Career Development Award

June 4, 2013

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