Latest News
Rare Research Report: August 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
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![Rare Research Report logo](/sites/default/files/styles/featured_image_for_news/public/2022-09/RDCRN_Blog-RareResearchReport_0.jpg?itok=BthNK150)
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![Headshot of Felipe Polo-Wood](/sites/default/files/styles/news/public/2022-10/RDCRN_Blog-mgnet-patient-spotlight-2022-3.jpg?itok=YVzed2IR)
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![RDCRN](/sites/default/files/styles/news/public/2022-07/RDCNR-Research-Roundup-image-blog_2.jpg?itok=UHyjADKc)
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![2022 RDCRN Steering Committee Leadership, Andrea Gropman, MD, Marc Rothenberg, MD, PhD, and David Kimberlin, MD](/sites/default/files/styles/news/public/2022-07/RDCRN_Images_2022-steering-committee.jpg?itok=ZRb9Y7Ao)
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![Headshots of Donald Kohn, MD, and Jolan Walter, MD, PhD](/sites/default/files/styles/news/public/2022-10/RDCRN_News_PIDTC_SCID-Grant-2022.jpeg?itok=zf81Dt5R)
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![RDCRN](/sites/default/files/styles/news/public/2022-07/RDCNR-Research-Roundup-image-blog_2.jpg?itok=UHyjADKc)
Patient Spotlight: Mitchell Magyar Makes an Impact on Urea Cycle Disorder Research
December 16, 2021
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![Mitchell Magyar with his mother and sister, wearing sunglasses and smiling](/sites/default/files/styles/news/public/2022-01/Magyar-blog.jpg?itok=pk9BcnPw)
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![Headshot of Glenn Furuta, MD](/sites/default/files/styles/news/public/2022-03/RDCRN_CEGIR_News_Spotlight_Furuta.jpg?itok=22-AJheS)