Latest News

Rare Research Report: January 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Lab Notes: A Rare Disease Physician-Scientist Reports on Impacts of COVID-19

May 29, 2020

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Mustafa Sahin, MD, PhD

Researchers Identify New Congenital Disorder of Glycosylation, GALNT2-CDG

May 26, 2020

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Abstract from FCDGC video

Research Survey for Rare Disease Patients and Their Families About Impacts of COVID-19

May 8, 2020

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Impacts of COVID-19

New Lung Disease Reveals Gene Regulating Airway Mucociliary Clearance

May 5, 2020

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Patients Power Research in Eosinophilic Gastrointestinal Disorders

February 24, 2020

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cegir-cured-group

Visit the Rare Diseases Clinical Research Network on Feb. 28 at Rare Disease Day at NIH

February 20, 2020

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The Rare Diseases Clinical Network and NIH logos appear over a geometric design featuring fuchsia, teal, and purple triangles.

NIH’s Rare Diseases Clinical Research Network Launches New Logo

February 11, 2020

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NIH Announces New RDCRN Funding to Bolster Rare Diseases Research Collaborations

October 4, 2019

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