Latest News
Rare Research Report: August 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
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![Rare Research Report logo](/sites/default/files/styles/featured_image_for_news/public/2022-09/RDCRN_Blog-RareResearchReport_0.jpg?itok=BthNK150)
Osteogenesis Imperfecta Over Time: What We’re Learning from a Natural History Study
September 22, 2023
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![Osteogenesis Imperfecta Over Time: What We’re Learning from a Natural History Study](/sites/default/files/styles/news/public/2023-09/RDCRN_Roundup-BBDC.jpg?itok=4Nswqsn5)
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![Rare Research Report logo](/sites/default/files/styles/news/public/2022-09/RDCRN_Blog-RareResearchReport_0.jpg?itok=41JjbIP7)
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![Updating Guidelines for Clinical Management of Phelan–McDermid Syndrome](/sites/default/files/styles/news/public/2023-08/RDCRN_Roundup-DSC.jpg?itok=ARtYj7by)
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![Telehealth in Myasthenia Gravis: What We’re Learning from a Pilot Study](/sites/default/files/styles/news/public/2023-08/Pilot-MGNet.jpg?itok=MWSBs9_m)
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![Rare Research Report logo](/sites/default/files/styles/news/public/2022-09/RDCRN_Blog-RareResearchReport_0.jpg?itok=41JjbIP7)