Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on Thursday, February 27, 2025 and Friday, February 28, 2025, from 10 am to 4 pm EST.
Rare Disease Day takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives.
This year, the National Center for Advancing Translational Sciences (NCATS) and the US Food and Drug Administration (FDA), both agencies within the Department of Health and Human Services, will sponsor a shared Rare Disease Day event as part of this global observance. FDA-NIH Rare Disease Day aims to provide the rare disease community—patients, caregivers, families, patient advocacy groups, researchers, clinicians, health care providers, and trainees/students—with information relevant to their lived experiences, including activities by FDA and NIH that promote research and product development for this underserved population.
FDA-NIH Rare Disease Day 2025 will be held virtually and in-person at NIH Main Campus (Natcher Conference Center) on Thursday, February 27, 2025 and Friday, February 28, 2025, from 10 am to 4 pm EST. The event will feature panel discussions, rare diseases stories, in-person exhibitors and scientific posters, and an art exhibition. The event is free and open to the public.
The RDCRN will host a booth during the event. You can visit our booth at any time to learn more about the RDCRN.
Learn more and register here. We hope to see you there!
