Latest News

Rare Research Report: December 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Precision Medicine approach to Nephrotic Syndrome

February 27, 2019

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Primary Immune Deficiency Treatment Consortium (PIDTC)

February 27, 2019

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newborn-screening

Brittle Bone Disorders Consortium pioneers Osteogenesis Imperfecta research and treatment

February 27, 2019

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Scientists at CCHMC Uncover Three Distinct Subtypes of Eosinophilic Esophagitis (EoE)

July 6, 2018

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Eosinophilic Esophagitis (EoE)

CEGIR – Improving research of eosinophilic gastrointestinal disorders with the patient perspective

January 5, 2018

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Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 3, 2018

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CEGIR – Changing the paradigm in research of eosinophilic gastrointestinal disorders

January 2, 2018

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RDCRN Conference on Clinical Research for Rare Diseases 2018

January 1, 2018

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