Impact Features
Dynamic teams of physicians, researchers, patients, and patient advocates work together in each RDCRN consortium to advance rare diseases research. This page collects feature articles highlighting both the work of the RDCRN consortia and the people behind that work. Choose the consortium acronym at the top of the page to view features articles related to that consortium.
January 29, 2024
The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.
November 21, 2023
October 18, 2022
Kristen Hutchinson Spytek is the president and co-founder of the National CMV Foundation, a patient advocacy group that aims to prevent pregnancy…
October 14, 2022
David Kimberlin, MD, is vice chair for Clinical and Translational Research and co-director of the Division of Pediatric Infectious Diseases at the…
October 11, 2022
The Congenital and Perinatal Infections Consortium (CPIC) is a group of scientists, clinicians, stakeholders, and patient advocates focused on rare…
January 26, 2021
The Congenital and Perinatal Infections Consortium (CPIC) brings together a coalition of 29 academic medical centers that have a longstanding history…