Impact Features
Dynamic teams of physicians, researchers, patients, and patient advocates work together in each RDCRN consortium to advance rare diseases research. This page collects feature articles highlighting both the work of the RDCRN consortia and the people behind that work. Choose the consortium acronym at the top of the page to view features articles related to that consortium.
![Primary Ciliary Dyskinesia Over Time: What We’re Learning from Natural History Studies](/sites/default/files/styles/news/public/2024-03/RDCRN_Roundup-GDMCC_0.jpg?itok=HTpNXZ9W)
March 25, 2024
Stephanie D. Davis, MD, and Thomas Ferkol, MD, share more about this study, while PCD family member Tori Eastvold shares what it’s like to…
![Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.](/sites/default/files/styles/news/public/2024-01/RDCRN_TAIRD_Jan2024.jpg?itok=sCSn81J4)
January 29, 2024
The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.
![Headshot of Billy Anton](/sites/default/files/styles/news/public/2022-03/RDCRN_Blog-Anton.jpg?itok=6FHwqrMZ)
March 29, 2022
Billy Anton is a business professional and vice chair of the PCD Foundation Board of Directors. He is also diagnosed with primary ciliary dyskinesia…
![Headshot of BreAnna Kinghorn, MD, MS](/sites/default/files/styles/news/public/2022-10/RDCRN_Blog-kinghorn.jpg?itok=QQUHQ6Fw)
March 22, 2022
BreAnna Kinghorn, MD, MS, is an assistant professor in pediatric pulmonary and sleep medicine at Seattle Children's Hospital and the University of…
![Genetic Disorders of Mucociliary Clearance Consortium logo](/sites/default/files/styles/news/public/2022-10/RDCRN_Blog-GDMCC.jpg?itok=yQC_zUWO)
March 11, 2022
The Genetic Disorders of Mucociliary Clearance Consortium (GDMCC) is a network of experts working together to better understand rare and genetic…