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Impact Features

Dynamic teams of physicians, researchers, patients, and patient advocates work together in each RDCRN consortium to advance rare diseases research. This page collects feature articles highlighting both the work of the RDCRN consortia and the people behind that work. Choose the consortium acronym at the top of the page to view features articles related to that consortium.

Click here for a complete list of all RDCRN consortia.

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Screenshot of the graphic user interface used by doctors for remote examinations. Source: Bioengineering journal

October 28, 2024

Researchers from MGNet harnessed artificial intelligence to develop a new, automated tool for neuromuscular assessments in myasthenia gravis.

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Screenshot of the graphic user interface used by doctors for remote examinations. Source: Bioengineering journal

October 28, 2024

Researchers from MGNet harnessed artificial intelligence to develop a new, automated tool for neuromuscular assessments in myasthenia gravis.

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Screenshot of the graphic user interface used by doctors for remote examinations. Source: Bioengineering journal

October 28, 2024

Researchers from MGNet harnessed artificial intelligence to develop a new, automated tool for neuromuscular assessments in myasthenia gravis.

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Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

January 29, 2024

The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.

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Telehealth in Myasthenia Gravis: What We’re Learning from a Pilot Study

August 22, 2023

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Headshot of Felipe Polo-Wood

February 25, 2022

Felipe Polo-Wood is an innovator—both in his work as an IT consultant and as a patient with myasthenia gravis (MG), a chronic autoimmune…

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Headshot of Linda Kusner, PhD

February 25, 2022

Linda Kusner, PhD, is a research professor of pharmacology, physiology, genomics, and precision medicine at the George Washington University School…