Impact Features
Dynamic teams of physicians, researchers, patients, and patient advocates work together in each RDCRN consortium to advance rare diseases research. This page collects feature articles highlighting both the work of the RDCRN consortia and the people behind that work. Choose the consortium acronym at the top of the page to view features articles related to that consortium.
June 26, 2024
To learn more about dystonia, the Dystonia Coalition (DC) is conducting a natural history study, “Dystonia Coalition Projects-3 (DCP3): Natural…
January 29, 2024
The Rare Diseases Act of 2002 (H.R. 4013) enacted the establishment of the Rare Diseases Clinical Research Network (RDCRN) in 2003.
May 17, 2022
Mark Rudolph serves as president of the Dystonia Medical Research Foundation (DMRF), a patient advocacy group that supports individuals and families…
May 10, 2022
David Peterson, PhD, is an associate research scientist at the Institute for Neural Computation, University of California San Diego (UCSD); director…
May 5, 2022
The Dystonia Coalition is an international network of researchers and patient advocacy groups working to advance the pace of research in the…